, Salem, MA

Local News

December 3, 2013

Rotary Club holds event to raise progeria awareness

Peabody Rotary recently held a red carpet presentation of the HBO production “Life According to Sam.” Close to 300 people attended the Nov. 2 event at Peabody City Hall. The documentary features the life of Sam Berns, who has progeria, a rare disease that affects about 250 children worldwide and causes early and rapid aging. Sam’s aunt, Audrey Gordon, is the Peabody-based Progeria Research Foundation’s executive director. Peggy Pedro and Cathy Gravel, the co-chairs of the event, were impressed by the size of the crowd and the reaction of those in attendance and glad the event raised awareness of this rare disease.

The movie, which was first shown on HBO on Oct. 21, details Sam’s life, from birth to the realization that he had progeria, to the discovery of the gene that causes the disease and the efforts to have the medication, through clinical trials, be accepted for treatment. The next step is to find a cure. The life expectancy for children with progeria is 13. Sam is now 17 and is very active in high school activities with plans to go to college soon. The movie is being shown on HBO, as well as On Demand.

After the very emotional movie was shown, Sam and his parents, Dr. Leslie Gordon and Dr. Scott Berns, spoke to the group through Skype and answered questions.

Text Only | Photo Reprints
Local News

AP Video
Ariz. Inmate Dies 2 Hours After Execution Began Crash Kills Teen Pilot Seeking World Record LeBron James Sends Apology Treat to Neighbors Raw: Funeral for Man Who Died in NYPD Custody Migrants Back in Honduras After US Deports Israeli American Reservist Torn Over Return Raw: ISS Cargo Ship Launches in Kazakhstan Six Indicted in StubHub Hacking Scheme Former NTSB Official: FAA Ban 'prudent' EPA Gets Hip With Kardashian Tweet Bodies of MH17 Victims Arrive in the Netherlands Biden Decries Voting Restrictions in NAACP Talk Broncos Owner Steps Down Due to Alzheimer's US, UN Push Shuttle Diplomacy in Mideast Trump: DC Hotel Will Be Among World's Best Plane Crashes in Taiwan, Dozens Feared Dead Republicans Hold a Hearing on IRS Lost Emails Raw: Mourners Gather As MH17 Bodies Transported Robot Parking Valet Creates Stress-free Travel Raw: Fight Breaks Out in Ukraine Parliament
Comments Tracker