A few years ago Tara Cassidy-Driscoll and her husband Tom Driscoll told their two sons — Thomas and Robert — about Choroideremia, the rare, inherited retinal degenerative eye disease they were born with.
Choroideremia could eventually lead to blindness in both boys, but research into the disease has come very far recently and the family decided the time was right to help raise the necessary money to contribute to finding a cure. They turned to Thomas and Robert’s favorite sport — lacrosse — to raise funds and bring awareness to the disease.
Endicott College will host “See by the Sea”, a lacrosse triple-header Sunday, beginning with Endicott College and Nichols College men’s teams playing at 1 p.m. and followed by Swampscott-Saugus at 3:30 p.m. and Marblehead-Newburyport at 5:30 p.m..
Robert Driscoll is a sophomore attack for Swampscott. Thomas, a senior defenseman for Governor’s Academy, will not be playing in the event, but will be in attendance with some of his teammates.
Admission to the event is free and the fundraising will include raffles, concession stand, T-shirt sales, music and more. Sponsors and donations will also be accepted.
“I know my mom and dad have talked about it for a while. We go to all these lacrosse tournaments in the summer and that’s how they got the idea,” Robert, 16, said. “All the money is going into research, but we wanted to help out as much as we could. They’ve worked really hard.”
Currently, the disease mostly affects Robert and Thomas at night. It’s difficult for the brothers to walk around in the dark, and Robert tries to carry a flashlight with him as much as possible.
The Driscolls have learned how to live with that, but they also live with the possibility that their vision could get worse as they get older.